Okay here goes....
Some of you may know about Taylor....but if not, he has been having what we call "episodes" since the last part of Nov of this past year. His "episodes" consist of him being either startled, getting scared, getting hurt, and a couple times of where nothing really happened...but he stops breathing, turns blue, passes out and is out for a little bit....tries to come out of it....his eye do a rolling thing and he sometimes falls back out...or I just can not keep him coherent. Then he is pretty lethargic for about 10 min afterward. Yes, they are scary, yes they are very stressful, and there does not seem to be any rhyme or reason for them really. We have done an EEG...did not find anything there. But in the two months they are happening a lot (2-3 times a week) so we are go back to a neurologist and another EEG here in a week or so. Then we are going to a cardiologist to rule out any heart or lung problem. We are in the mist of just not knowing if any damage is being down and every time one of the "episodes" happen we never know if he will come out of it..so we try to avoid anything that will make him feel like he needs to cry.....hard to do for any parent of a toddler!!! And this also makes leaving him very hard. Yes, my in-laws have been around them some of the times he has done this so they have dealt with them...but it is hard to put this stress on others that have not been through one of these "episodes" with us.
I have really debated posting this..I am not trying to tell of you our problems...and it took me a while to come to grips with everything as well....during the start of all of this was during all of Weston's doctor visit, testing and so forth, so I had a lot going on. And the doctor kept telling us that he would only do this a couple times at the most...well they where wrong!!!! And at this point we need answers and we need to find out why...so I just ask for your prayers on this.
3 comments:
You know we are praying for Taylor and that you guys get some real answers sooooon!! I can't imagine going through those episodes and what it is like for you!!
Oh my goodness, I hope you don't feel bad about sharing. It will just allow even more to pray for that sweet boy! And it gives you a bigger sense of community with other parents who understand being scared for a child. I really hope and pray that you get some clear answers soon. You are doing all of the right things!
I am so glad you shared this! How so scary!!! I will be praying for some answers and that he doesn't ever do this again!
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