I have not been very good at keeping up with …really everything right now, so please for give me!!!
Taylor is doing okay right now. The doctors warned us this could be drawn out thing for us. His blood has not improved any but it has not gotten worse so that is a good thing for now. Every time we go we are prepared for the blood transfusion and every time he is borderline needing it. Last week we had a day where we had 5 episodes!! That was the most we have ever had and that day was a very long day. But we have gone two whole days with out one and that was very nice!
We go back on Friday and they told me that if there there has been no change in his levels that we will do the transfusion on Friday. We have learned that he has a heart murmur, but is should hopefully go away when his red blood cells come back. So we hope his bone marrow has started making red blood cells again or will start soon!!!