Wednesday, November 19, 2008

Weston


Okay here goes, this is going to be my longest one yet...some of you may know about Weston but other may not, and I am now at a point where I think I can talk about all of this. It has been a long month of this and ups and downs but right now we are on a up which is good and why I think I can write about some of this. Weston has a speech delay....so he does not talk like a almost three year old should. He really talks like a 20 month would. We started seeing this around his second birthday, when he really had not added any words to his vocab since he was 18 months old. But he understands everything and we are learning that he knows a whole lot more then we realized he knew. He knows his alphabet(which I have never sat down with him and really made him learn) but he knows it. He know his numbers, colors and actions, plus more I just did not want to get caught in the little details. At first people where trying to label him autistic..because of his speech and the fact the he does not eat. But we have pretty much ruled that out. Then they where labeling him apraxic (also known as verbal apraxia or dyspraxia, is a speech disorder in which a person has trouble saying what he or she wants to say correctly and consistently. It is not due to weakness or paralysis of the speech muscles (the muscles of the face, tongue, and lips) which could mean that he would never talk normal...but after another series of testing today..they all concluded that he is just delayed YEAH!!!! (or so this group said) That was the best news we had received in all of this. We still have another round of doctors to go to at the first of Dec and we will be going to San Antonio for that and are hoping to learn more good news and be reassured we are on the right track here with everything. Then we will try to start working of the eating part. He eats crackers and baked Cheetos and Doritos and sometimes chicken nuggets but that is about it!! He drinks white grape juice but no milk product what so ever.
So there it is, why it is so hard to deal with some of these things. I am always afraid people will think I am a bad mother because my kid does not talk or other random thoughts go through my head and now that he is getting older it is just becoming more apparent to others and I want to explain to everyone that we come across but it is what it is and we are tying all we can do for this precious little boy. I know God has given him some huge gifts and I know God has his hand in all of this so I just try to look for peace in that and have faith that God will heal him and allow him to talk if it be his will.

3 comments:

Melissa said...

Chris, now you know that you are NOT a bad mother - you are a GREAT mother!!! God gave you Weston to care for and you are doing a wonderful job! You are doing everything you can to try and give Weston the best you can - and I mean you are doing EVERYTHING!!

We are glad to hear the good news too!! We'll be thinking and praying for you guys on your trip to San Antonio - and be waiting to hear more good news!! We love you guys!!

Amy said...

That is great news!!! I can not wait to hear what you find out in December!!! We love you...

Monica said...

So glad you have received good news so far. It is so hard to watch little ones struggle!! I have watched my nephew struggle and my sister as his mother hurt. I know it is hard. You are doing such a good job and getting him the help to work through this. I pray for continued good news. I don't get excited about always drinking grape juice, but the other stuff sounds kind of fun to eat all the time. : )